Find safe & effective
treatments for Long Covid

A practical online toolkit offering validated scientific research and experiences of patients and healthcare providers. Discover tools for effective self-care that work for you.

Based on real experiences

Long Covid impacts everyone differently. That’s why we’ve gathered the experiences of people just like you. Learn how others responded to various treatments and find insights to help guide your recovery.

Dozens of treatments to help you

We know it’s hard to find reliable treatments for Long Covid, especially with no FDA-approved options. The Toolkit provides science-backed approaches inspired by conditions like ME/CFS and POTS to help you explore what might work best for you.

Scientifically validated

Each option in the Toolkit is reviewed and validated by our team of researchers, so you can feel confident exploring treatments that are current, effective, and safe.

  • “People with Long Covid do not feel heard and are often distraught because they do not know how to get rid of their complaints. I highly support this initiative because it is important to combine patient experience with scientific knowledge.”

    — Professor Diederik Gommers, MD/PhD

    Professor Intensive Care Medicine at Erasmus MC, Rotterdam & former member of national Covid-19 outbreak management team

  • "This toolkit could also be helpful for the (to be established) Long Covid expertise centers in the Netherlands as an up-to-date 'cookbook'."

    — Assistant professor Merel Hellemons, MD/PhD

    Clinical epidemiologist, pulmonologist and Long Covid researcher

  • The Toolkit makes it easier to find and understand treatment information, even as research keeps evolving and there are no fixed treatment plans. I like how it gives patients the support they need to take action, especially when they're mostly managing their disease by themselves.

    — Diana Schneider, M.A., B.Sc

    Pharmacist, Long Covid Patient, Co-Founder of #UniteToFight2024

  • "There is a need for information that can help people to make safe and effective choices and I think this project can fulfill an urgent need for people with Long Covid."

    — Dr Margaret O'Hara

    Founder Trustee Long Covid Support, author in Nature, BMJ, Lancet | lived experience of Long Covid

  • "The toolkit can help patients to better work on improvement of their condition, whilst scientists work on finding a proven path to recovery."

    — Ellen Bark

    Chair of Long Covid Nederland Foundation

  • "This project is an innovative way to combine existing scientific evidence with patient experiences. This will serve as an excellent starting point for clinical interventions, additional scientific research and the formation of standards."

    — Ingrid Geesink, PhD

    Advisor and researcher in the field of health science and technology, ME/CFS and health data re-use

  • "PostCovid NL is very enthusiastic about the Long Covid Toolkit. If executed well, it meets an enormous need amongst patients: a trustworthy overview of interventions, combined with actionable scientific evidence.“

    — Diewke de Haen

    Director PostCovid NL

Explore the Toolkit

We are building the Toolkit to bring a reliable and actionable resource to the Long Covid community. Created by a passionate team, it aims to support informed, empowered decisions. Curious about our goals? Our Policy Plan describes our strategy and vision.