Help build a future
for long Covid patients

Find safe and effective treatments, that work for you.

  • Some patients are bedbound

    for years after contracting the disease

  • Over 65 M people worldwide

    Suffer from long Covid

  • There is a lack of information

    to make safe and effective choices

I highly support this initiative because it is important
to combine patient experience with scientific knowledge.”

Diederik Gommers, Intensivist

Why we build the toolkit

Evidence
based

The tools are assessed by doctors and epidemiologists, based on scientific literature

Patient
experiences

Read experiences of people with long Covid and their caregivers.

Tools are categorised by safety, effectiveness and symptoms. No more spending hours on searching the internet!

Actionable and easy
to use

By people with
long COVID

The Toolkit is founded and made by people that have a lived experience

PostCovid NL is very enthousiastic about the Long Covid Toolkit. If executed well, if meets an enormous need amongst patients.


Dieuwke de Haan
Senior team lead PostCovid NL (Longfonds)

Testimonials

“People with long Covid do not feel heard and are often distraught because they do not know how to get rid of their complaints. I highly support this initiative because it is important to combine patient experience with scientific knowledge.”


Diederik Gommers, MD PhD
Professor Intensive Care Medicine at Erasmus MC, Rotterdam & former member of national Covid-19 outbreak management team

"There is a need for information that can help people to make safe and effective choices and I think this project can fulfill an urgent need for people with Long Covid."


Dr. Margaret O'Hara
Founding trustee Long Covid Support, author in Nature, BMJ, Lancet - has long Covid

The Long Covid Toolkit

The Toolkit combines the latest scientific research, scored using standards developed by epidemiologists. Combined with reviews by people with long Covid and their caregivers, this gives you a good idea what treatments and tools may work for you

Community

Edo and Joanneke are joined by a growing number of volunteers. Do you have the skills to make the Toolkit a succes?

Help us realize the Toolkit by donating!

By donating this is how you will help make a difference in the lives of millions of people:

  • Help people with long Covid manage their symptoms safely

  • Help researchers to find interesting new topics for research and large scale trials

  • Help doctors treat their patients more effectively

The Toolkit is a not-for-profit initiative. We need € 95.000 to start up the Toolkit and the supporting organisation. Will you help us too?

Donate