About us
The Long Covid Toolkit was started by Joanneke and Edo, who both have long Covid.
Join the Scientific / Clinical Board
We are currently looking for domain experts to join our scientific/ clinical board and help make a difference in the lives of people living with long Covid. The initial time commitment will be around 4-8 hours while the board is starting up, with an average of 2 hours a month after that. These are unpaid positions for the time being. We strive towards a diverse Board of up to 15 people that will collaborate on the Toolkit, each bringing their own unique expertise and experience to the team.
We are looking for people from a variety of professions ranging from pharmacists and doctors to long Covid researchers and occupational therapists.
As a member of the Scientific / Clinical Board, you will:
Decide on what content areas the Toolkit should include from a scientific or clinical standpoint (treatments, self-diagnostic tests, etc.)
Oversee the scientific standard for classifying evidence to categories on the Toolkit website.
Oversee scientific communication.
If you are interested in joining, please contact us.
Scientific / Clinical Board members
Prof. Todd Davenport, PT, DPT, PhD, MPH, OCS
Professor & Chair, Department of Physical Therapy, University of the Pacific
Todd serves as tenured full Professor in the Department of Physical Therapy in the School of Health Sciences at the University of the Pacific in Stockton, California, where he teaches in and serves as Vice Chair of the Doctor of Physical Therapy (DPT) program.
Prof. Merel Hellemons, MD, PhD
Pulmnologist and assistant professor, Erasmus University Medical Center
Merel is a Pulmonologist specialized in end-stage lung disease and lung transplantation and assistant professor at the Erasmus University Medical Center in Rotterdam. She coordinated the long-COVID outpatient clinic and currently is the coordinator for several long-COVID research projects. She is a medical ambassador for the Dutch long-COVID foundation (Stichting Long-COVID) and member of the long-COVID expert panel of the Dutch federation of medical specialists. She is actively involved in dissemination of long-COVID expertise and actively contributes to the public debate in the Netherlands about long Covid.
Margaret O’Hara, PhD
Expert on Public & Patient Involvement and Engagement in Research
Margaret is a founding trustee of the charity Long Covid Support, a patient-led charity registered in England & Wales. As a person with Long Covid, and a patient advocate, she has worked with organisations such as NHS England, NIHR and with professional academics and clinicians. She has co-authored peer reviewed articles in Long Covid, conducted patient-led research, presented at international and national conferences and is co-creating research with professional academics and health practitioners.
She has been a long-time patient advocate, conducting patient-led research in Hyperemesis Gravidarum and she is also a Trustee of the charity Pregnancy Sickness Support. She currently works as a patient involvement specialist in an acute hospital trust in England. Her PhD is in breath analysis for human disease diagnosis and previous professional background is as a research scientist, medical physicist and school teacher.