Find safe & effective
treatments for Long Covid

A practical online toolkit offering validated scientific research and experiences of patients and healthcare providers. Discover tools for effective self-care that work for you. Find out more about us or subscribe to our newsletter in English or Dutch.

Evidence-based

Patient experiences

The tools are assessed by scientific experts and medical professionals, based on scientific literature.

Read experiences of people with Long Covid and their caregivers.

By people with Long Covid

Actionable and easy

The Toolkit is founded and is being developed by people that have lived experience of Long Covid.

Tools are categorised by safety, effectiveness and symptoms.

Based on real experiences

Long Covid impacts everyone differently. That’s why we’re gathering the experiences of people just like you, as well as the experiences of their healthcare providers. Learn how others responded to various treatments and find insights to help guide your recovery.

Tools and treatments to help you

We know it’s hard to find reliable treatments for Long Covid. The Toolkit provides science-backed approaches combined with first person knowledge. We are grateful for what we can learn from prior research on other post infectuous diseases, ME/CFS and POTS, and conversely hope knowledge on Long Covid will benefit patients with these conditions.

Trusted by experts and patients

  • “I highly support this initiative because it is important to combine patient experience with scientific knowledge.”

    — Professor Diederik Gommers, MD/PhD

    Professor Intensive Care Medicine at Erasmus MC, Rotterdam & former member of national Covid-19 outbreak management team

  • "This toolkit could also be helpful for the (to be established) Long Covid expertise centers in the Netherlands as an up-to-date 'cookbook'."

    — Assistant professor Merel Hellemons, MD/PhD

    Clinical epidemiologist, pulmonologist and Long Covid researcher

  • The Toolkit makes it easier to find and understand treatment information, even as research keeps evolving and there are no fixed treatment plans. I like how it gives patients the support they need to take action, especially when they're mostly managing their disease by themselves.

    — Diana Schneider, M.A., B.Sc

    Pharmacist, Long Covid Patient, Co-Founder of #UniteToFight2024

  • "There is a need for information that can help people to make safe and effective choices and I think this project can fulfill an urgent need for people with Long Covid."

    — Dr Margaret O'Hara

    Founder Trustee Long Covid Support, author in Nature, BMJ, Lancet | lived experience of Long Covid

  • "The toolkit can help patients to better work on improvement of their condition, whilst scientists work on finding a proven path to recovery."

    — Ellen Bark

    Chair of Long Covid Nederland Foundation

  • "This project is an innovative way to combine existing scientific evidence with patient experiences. This will serve as an excellent starting point for clinical interventions, additional scientific research and the formation of standards."

    — Ingrid Geesink, PhD

    Advisor and researcher in the field of health science and technology, ME/CFS and health data re-use

  • "PostCovid NL is very enthusiastic about the Long Covid Toolkit.“

    — Diewke de Haen

    Director PostCovid NL

View the prototype

We’re currently building the Toolkit and plan to launch the Long Covid Toolkit in early 2025. Take a look at the prototype to see what you can expect.

Learn more or help out

We are building the Toolkit to bring a reliable and actionable resource to the Long Covid community. Created by a passionate team, it aims to support informed, empowered decisions. Curious about our goals? Our Policy Plan describes our strategy and vision.

We are hoping to launch the Toolkit in 2025. Do you see opportunities to work together or find additional funding? Please let us know by sending us an email at info@longcovidtoolkit.org. Thank you so much.